Welcome to We Are HAE!​

Whether you have just been diagnosed, you have been living with hereditary angioedema (HAE) for some time, or you have a family member or friend suffering from HAE, it is important to understand the disease and to be prepared.

HAE is a rare, serious and potentially life-threatening genetic disorder occurring in 1 out 50.000 people. In Europe approximately 10.000 people are affected.

Choose your country, discover more about HAE, learn how to handle the disease in the everyday life and join your local HAE community!

HAE causes repeated episodes of spontaneous swelling that can occur at any time and in almost any part of the body but more predominantly in the hands, feet, face, airway (throat) and internal organs. HAE is not an allergy or allergic reaction.

HAE is the result of a genetic mutation caused by a deficiency of the blood protein functional C1 esterase inhibitor (C1-INH).

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Albania
Austria
Bulgaria

Croatia

Czech Republic
Denmark

Estonia

Finland
France
Germany
Greece
Hungary
Ireland
Italy
Latvia
Lithuania
Luxembourg

Netherlands

North-Macedonia
Norway
Poland
Romania
Serbia

Slovakia

Poland
Spain
Sweden
United Kingdom
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