Welcome to

We Are HAE

This website aims to give people all the basic information they need on the rare condition of Hereditary Angioedema, or HAE. Whether you or your child have HAE, or you know someone with HAE, or you are just interested in finding out more about this condition, we hope that the information presented here is informative and answers any questions that you might have.

What is HAE

Hereditary angioedema (HAE) is a rare, serious, potentially life-threatening genetic disorder occurring in 1 in 50,000 to 1 in 150,000 people worldwide. In Europe, approximately 10,000 people are affected.

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Living with


In the EU, it is possible to join the local patients’ association, which was founded for those who are either directly or indirectly affected by HAE.

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Patient advocacy group (PAG)

A range of Fact Sheets, Brochures and Discussion Guides on HAE.

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Find an HAE specialist

Search for an HAE clinical specialist

in your area.

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View a range of further

additional questions.

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